Duchenne Mom

A Servant’s Heart

My children inspire me on a daily basis. They make me want to be a better person. They inspire me with their words, their actions, and their amazing ability to fight a disease like Duchenne with such grace. I work hard every day to serve them with love, humility, and compassion. I want my children to feel loved unconditionally. I never want them to feel like their needs are a burden to me. I strive to have a servant’s heart.

0 3 min read

Sacred Scars

I have deep scars all over me. I’m covered in painful wounds that have completely changed my life. Most of them are not visible to the eye, but I assure you they are there. Each scar has been left behind one by one from all the painful things I’ve gone through in my life. The loss of my older brother will forever leave a mark on my heart, one that I still feel every day. There are so many invisible scars, and they all hold a significant story, but the one that cuts the deepest is most definitely my Duchenne scar.

0 3 min read

Strength for the Day

Nights are the hardest for me as a Duchenne mom. The worries, the stress, and the exhaustion seem to catch up to me as soon as my head hits the pillow. I try to gear up for the night ahead, knowing that I will still be needed throughout the night. I feel honored to be a caretaker to my beautiful boys, but that doesn’t take away the exhaustion that it brings. By the end of the night, I feel like my strength is completely depleted, and yet I must get up every time I’m called.

0 5 min read

You Are Enough

I’m a good mom, but I don’t always feel like one. Every day I do so many things for my children that I’m proud of, but by the end of the day, my thoughts always seem to shift to where I fell short. I use every ounce of my energy to care for my family. I accomplish more in one day than some probably get done in a week, and yet, I go to bed focused on my failures. I close my eyes, wondering what I could’ve done better. I’m constantly wondering if I did enough, and it’s exhausting.

0 4 min read

To the One Who Struggles with Depression

I see you cry in the quiet of the night as your worst fears haunt you like a bad dream. I see you put on a smile in an attempt to hide your pain from the world. You feel ashamed, afraid, and misunderstood. I hear you politely answer questions with your usual, “I’m fine.” Some days you are fine, but […]

2 5 min read

The Power of Purposeful Thinking

Every day we have a choice to make. We can live in fear by letting negative thoughts consume our minds, or we can take charge of them with determination. We can take our thoughts captive and purposefully focus on joy, or we can let the pain take over, but the choice is ours to make.

0 4 min read

Grieving Change

There is no parenting manual for Duchenne parents. There are no perfect words to say that will take away the heavy emotions that come with this disease. All we can do is walk alongside them at their pace. Sometimes that means encouraging them to do hard things.

0 6 min read

It’s Not the End of The World

That day felt like the end of the world. Depression took over and brought me to a dark place I didn’t recognize. A place where getting out of bed was suddenly difficult, and sobbing in the shower was normal. Everyone else seemed so different from us now. I didn’t understand how the world could keep turning or how the sun could keep rising. How could everyone continue living like normal when our lives had just so tragically been flipped upside down?

0 3 min read

The Calling of a Caregiver

I have a confession to make. I love being a mom, and I’m honored by my role as a caregiver, but sometimes it exhausts me to my core. Sometimes I don’t feel like being patient. Sometimes I don’t feel like being gentle, kind, and loving. I care for my children every day, and I wouldn’t change that for the world, but it’s also really hard.

0 6 min read

The Secret to Discovering Life’s Greatest Moments

Someone recently asked me what I do to show intentional gratitude in my life. A question that should’ve been simple was somehow difficult for me to answer. I’ve always considered myself a grateful person. I grew up in a happy home with wonderful parents and siblings. God has blessed me with a life that I’m proud of, full of wonderful memories. I’m married to my best friend, and we have three incredible children together. My life is full of things to be grateful for, yet I couldn’t answer the question.

0 4 min read

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