At that moment, I was once again blinded by that incredible light inside of him. It shines through his laugh, his selflessness, his kindness, and the way he loves others with every piece of his heart. It’s rare that someone so young can make you want to be a better person, but that’s what he does.
I’m a good mom, but I don’t always feel like one. Every day I do so many things for my children that I’m proud of, but by the end of the day, my thoughts always seem to shift to where I fell short. I use every ounce of my energy to care for my family. I accomplish more in one day than some probably get done in a week, and yet, I go to bed focused on my failures. I close my eyes, wondering what I could’ve done better. I’m constantly wondering if I did enough, and it’s exhausting.
Duchenne, you have no idea how much you’ve changed our lives since diagnosis day. It started with a simple blood test and ended with a phone call that brought me to my knees. I cried out to God, begging Him to heal my boys. I begged God to take you out of our lives, but sadly you’re still with us. It’s taken me a long time to accept that fact.