Diagnosis Day

We all remember that day. Sometimes the very thought of it can bring us to our knees in agony. Other days it simply acts as the line of demarcation, dividing our old life from our new one. Diagnosis Day is a day we never forget because what follows is a completely different way of life. Among the Duchenne community, this day is referred to as D-Day. Most of us have the date etched in our minds like a scar we cannot erase.

0 4 min read

Grieving Change

There is no parenting manual for Duchenne parents. There are no perfect words to say that will take away the heavy emotions that come with this disease. All we can do is walk alongside them at their pace. Sometimes that means encouraging them to do hard things.

0 5 min read
Welcome!

I'm Christi. As a mom of two sons with Duchenne, I wanted to create a place for parents like me. A place to feel supported and encouraged. A place to remind you that you are not alone on this journey.