Diagnosis Day

We all remember that day. Sometimes the very thought of it can bring us to our knees in agony. Other days it simply acts as the line of demarcation, dividing our old life from our new one. Diagnosis Day is a day we never forget because what follows is a completely different way of life. Among the Duchenne community, this day is referred to as D-Day. Most of us have the date etched in our minds like a scar we cannot erase.

Grieving Change

There is no parenting manual for Duchenne parents. There are no perfect words to say that will take away the heavy emotions that come with this disease. All we can do is walk alongside them at their pace. Sometimes that means encouraging them to do hard things.