Nights are the hardest for me as a Duchenne mom. The worries, the stress, and the exhaustion seem to catch up to me as soon as my head hits the pillow. I try to gear up for the night ahead, knowing that I will still be needed throughout the night. I feel honored to be a caretaker to my beautiful boys, but that doesn’t take away the exhaustion that it brings. By the end of the night, I feel like my strength is completely depleted, and yet I must get up every time I’m called.
I remember the day I became a mother like it was yesterday. I remember vividly how it felt to hold my precious newborn for the first time. I remember the tiny fingers and tiny toes. I can almost smell that heavenly newborn skin aroma when I think about it. Oh, how I love that smell.