As a Duchenne parent, there is so much that I wish other people knew. There are so many misconceptions and incorrect assumptions that make life even harder for someone like me. Most people in my life are incredibly loving, supportive, and understanding. Their presence means the world to me, but there are moments I wish I could make things a bit clearer for the rest of the world.
Empathy is powerful. Kindness is critical. When I can share my reality with someone and still feel loved, it’s comforting. When I feel even remotely understood, it makes such a difference in my life. I carry so much weight on my shoulders, and when someone cares enough to try to understand my world, it makes the load just a little lighter.