That day felt like the end of the world. Depression took over and brought me to a dark place I didn’t recognize. A place where getting out of bed was suddenly difficult, and sobbing in the shower was normal. Everyone else seemed so different from us now. I didn’t understand how the world could keep turning or how the sun could keep rising. How could everyone continue living like normal when our lives had just so tragically been flipped upside down?
People are usually caught off guard when they find out that I have two sons with Duchenne muscular dystrophy. They say things like, “I don’t know how you do it?” or “I could never handle that.” They call me brave and strong before they even know me. People compliment me for simply surviving in the world of Duchenne. My faith may be strong, but I assure you, I am weak. The truth is, the ones who are really worthy of these comments are actually behind the curtain. My children are the inspirational characters in our story, not me.