ALL POSTS

The World of Duchenne

I live in two worlds.

One is the world we all live in. Everyone is familiar with how to navigate this world. There are endless maps, books, and guides to help people find their way around. Support is freely available to anyone trying to learn how to thrive here. I still live in this world, but it’s no longer my home.

0 6 min read

Diagnosed with Duchenne

I remember the day I became a mother like it was yesterday. I remember vividly how it felt to hold my precious newborn for the first time. I remember the tiny fingers and tiny toes. I can almost smell that heavenly newborn skin aroma when I think about it. Oh, how I love that smell.

0 5 min read

The Empty Chair

On November 6th, my whole world changed. I found out that you were gone and nothing has been the same since. I keep expecting you to walk through the door and make everything okay again. I just can’t seem to grasp this new reality without you in it.

0 4 min read
Welcome!

I'm Christi. As a mom of two sons with Duchenne, I wanted to create a place for parents like me. A place to feel supported and encouraged. A place to remind you that you are not alone on this journey.